Lapis "CDKL5" with Pavé Warrior Pendant

The LAPIS "CDKL5" WITH PAVÉ WARRIOR PENDANT has been designed to represent the most fierce little girl we know! Diagnosed with CDKL5 deficiency, Madison is a true warrior as she navigates life in the face of adversity.

The CDKL5 Gene tells the body how to make a specific protein needed for proper brain development. A CDKL5 deficiency disorder is a rare X-linked genetic disorder resulting in  seizures that begin within the first months of life. These seizures cause severe delays in the child’s development.

 Although affected by this rare disorder,  her mother Randi, has helped instill strength and resilience within her to now shine brighter than all the stars in the galaxy! Oriana worked closely with Randi to design a bracelet that would not only represent Madison but all of the “warriors” out there. Blue Lapis is associated with strength, courage, wisdom, intellect, friendship and truth which is why we knew it was the perfect color to pair with our pavé “warrior” charm. 

All proceeds from the sale of this bracelet will be donated directly to NYU Langone “FACES” in an effort to help find a cure for epilepsy while providing exceptional clinical care, education, awareness and support to all who are in their care.

To donate directly click HERE

-12mm faceted lapis

- Pavé Warrior Pendant